"But you don't look sick"

[vakkotaur]

Someone with Lupus needed to try to explain a day in her life to someone not afflicted. Thus was born Spoon Theory. It's an interesting read and an understandable, if only approximate, explanation of how life is different for some. I suspect one or two folks reading this might find it useful and more will likely find it of interest, thus I bring it up.

Comments

[kiwihunter8.livejournal.com]

Pretty good explanation. I'm not sick, but I've always been kind of low energy and usually trade off this task for that task and try to plan my days out to take advantage of strong days and weaker days. I think as people grow older this happens too.

[melskunk.livejournal.com]

My husband has to deal in 'spoons' because of a chronic pain issue compounded by a fatal allergy to the pain medications that would help it. In his case, he found activity level wasn't really linked to his pain, so now if he feels like he can walk, he does (because he might not be able to again for a week), but he has to watch out for the 'I need to head back now or I won't be able to move before I get there' time.
In his case, on those days, he feels bad about using the handicap parking, because he doesn't 'feel handicapped', but we know without that closer space, we'd have to, for example, stop walking around the mall a lot sooner, as non-level ground is his biggest set off. Because of that, we generally have to walk in malls or other places with super level floors or great sidewalks. And, preferably, no big crowds (a cane is not good for maneuvering).
Means you always have to think, though, even on the good days. :(

[irpooh.livejournal.com]

Thanks for posting that, now I have a term for future reference...

[wordslinger.livejournal.com]

Excellent site! Thanks for posting it!

[taper.livejournal.com]

Spoons are very true.